Sickle Cell Data and Reports

Explore data on sickle cell disease in Minnesota and nationally.

National

• American Heart Association: Sickle Cell Disease and Pediatric Stroke Risk
• American Society of Hematology (ASH)
• CDC: Data and Statistics on Sickle Cell Disease
• CDC: Sickle Cell Data Collection Program
• Annals of Emergency Medicine: Trends in Sickle Cell Disease-Related Mortality in the United States, 1979 to 2017.
• CDC MMWR: Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability—Sickle Cell Data Collection Program, 11 States, 2016-2020
• Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together (PDF)

Minnesota

MDH and partners are working to learn more about SCD in Minnesota. We will share more data as we have it available.

• MDH: A Snapshot of Sickle Cell Disease and Sickle Cell Trait in Minnesota (PDF)
• MDH: Sickle Cell Disease-Related Hospital Encounters (PDF)
• MDH: Newborn Screening Data Summaries
• MDH: Long Term Follow-up of Children Identified with Sickle Cell Disease (SCD) through Newborn Screening, 2013-2018 (PDF)
• CDC: Newborn Screening Data, Minnesota, 2016-2020