Children and Youth with Special Health Needs (CYSHN)
Programs
- Birth Defects Monitoring and Analysis
- Early Hearing Detection and Intervention
- Follow Along Program
- Longitudinal Follow-up for Newborn Screening Conditions
Related Sites
Contact Info
About the Children and Youth with Special Health Needs Section
Vision
A Minnesota where all children and youth with special health needs and disabilities can live a life of dignity, opportunity, joy, and belonging.
Focus areas
CYSHN programs provide state-level leadership and collaboration to achieve our vision with an emphasis on quality improvement in the following areas:
- Fiscal responsibility
- Capacity, learning, and growth
- Internal processes
- Community and partnerships
Who do we serve?
One in every five Minnesota families with children has at least one child with a special health need. Estimates of children with special health needs in Minnesota range from 160,000 to 200,000
Respect for identities
In our commitment to inclusivity and respect for all identities, we strive to use language that honors each individual’s preferences and lived experiences. We recognize that having a health condition or disability is a natural and valuable part of human diversity, and that language used to describe identity is both personal and evolving. For example, some people with disabilities prefer identity-first language (e.g., “disabled person”), others prefer person-first language (e.g., “person with a disability”). We respect these differences and aim to use descriptors relevant to the context and only when essential. We strive to stay responsive and open to changing our terminology as language evolves.
In alignment with federal and state statutory language, our program uses the term “special” in the title Children and Youth with Special Health Needs and Disabilities. We acknowledge that for some, the term “special” is considered problematic and may imply a sense of “otherness” rather than inclusion. While this language reflects current terminology, we remain open to exploring ways to address and evolve its usage in response to community feedback. Our goal is to communicate in ways that reflect each person’s preferred identity and foster a sense of belonging and respect.
Our approach to inclusive language emphasizes relationship-building, respecting each person’s chosen identity, and acknowledging that preferences can change over time. This statement serves as general guidance, as we understand that meaningful connection with individuals and communities is essential to fully respecting their identities.